Personal informatics in chronic illness management

MacLeod, H., Tang, A., and Carpendale, S. (2013). Personal informatics in chronic illness management. In GI '13: Proceedings of the 2013 Graphics Interface Conference, 149--156.

Acceptance: 38% - 16/42.

Abstract

Many people with chronic illness suffer from debilitating symptoms or episodes that inhibit normal day-to-day function. Pervasive tools offer the possibility to help manage these conditions, particularly by helping people understand their conditions. But, it is unclear how to design these tools, as prior designs have focused on effortful tracking and many see those tools as a burden to use. We report here on an interview study with 12 individuals with chronic illnesses who collect personal data. We learn that these people are motivated through self- discovery and curiosity. We explore how these concepts may support the design of tools that engage curiosity and encourage self-discovery, rather than emphasize the behaviour change aspect of chronic illness management.

Materials

PDF File (http://hcitang.org/papers/2013-gi2013-personal-informatics.pdf)

Keywords

Personal informatics, Healthcare, Chronic disease management, Qualitative studies.

BibTeX

@inproceedings{macleod2013personal,
  year = {2013},
  type = {conference},
  title = {Personal informatics in chronic illness management},
  publisher = {Canadian Information Processing Society},
  pdfurl = {http://hcitang.org/papers/2013-gi2013-personal-informatics.pdf},
  pages = {149--156},
  location = {Regina, Sascatchewan, Canada},
  keywords = {Personal informatics, Healthcare, Chronic disease management, Qualitative
studies.},
  isbn = {978-1-4822-1680-6},
  date-modified = {2014-01-11 05:46:58 +0000},
  booktitle = {GI '13: Proceedings of the 2013 Graphics Interface Conference},
  author = {MacLeod, Haley and Tang, Anthony and Carpendale, Sheelagh},
  address = {Toronto, Ont., Canada, Canada},
  acceptance = {38% - 16/42},
  abstract = {Many people with chronic illness suffer from debilitating symptoms
or episodes that inhibit normal day-to-day function. Pervasive tools offer
the possibility to help manage these conditions, particularly by helping people
understand their conditions. But, it is unclear how to design these tools,
as prior designs have focused on effortful tracking and many see those tools
as a burden to use. We report here on an interview study with 12 individuals
with chronic illnesses who collect personal data. We learn that these people
are motivated through self- discovery and curiosity. We explore how these concepts
may support the design of tools that engage curiosity and encourage self-discovery,
rather than emphasize the behaviour change aspect of chronic illness management.},
}